Showing posts with label #NoHairDontCare. Show all posts
Showing posts with label #NoHairDontCare. Show all posts

Sunday, 21 June 2015

B is for... A-Z of hairloss

Having just tried writing the title, I'm not sure it makes perfect grammatical sense, but hopefully you get the gist! As promised, I am continuing in the vein of our A-Z of hairloss and understandably opting for the letter B (it comes next apparently!). Here goes and don't forget if you think I've missed something, let me know! 

B is for...

Backwards - this is not a veiled insult to our intelligence, but actually reference to the process I went through with my hairloss. All the time, I kept thinking to myself, I'm going backwards - one step forward coming to terms with it, then two and sometimes even three back. Getting used to artfully arranging my hair to cover the patches, only to have the patches expand; making mini 'wigs' to adhere to the patches as a hair replacement, only to have the patches grow still more. Gaining a small amount of regrowth from steroid injections (which weren't worth the pain) only for that to fall out too. The list goes on and on...

It's not all bad though; yes, initially it felt like I was constantly slipping backwards, but over time, as I adjusted, this feeling became less and less frequent. and now, I am doing nothing but charging forward! I am a changed person (at least a little bit) and hopefully for the better. It hasn't all been rosy, but overall as an experience, my hairloss has been more good than bad - a feeling that I hope you get too, or at least a level of certainty that the 'backwards' feeling will pass.

Bald / Baldness - OK, I know this is an obvious one, but in the majority of cases, the ultimate outcome is some or total baldness. There are conditions, for example diffuse Alopecia, which create general thinning, and of course not all cancer patients or people with trichotillomania experience total hairloss, but baldness is a fairly good bet! This aspect was one of the worst for me - there was no hiding it and my appearance was so very different - but it has also turned out to be one of the best aspects too! Read more about my experiences here, here and here...

Bandana - another word for scarf obviously, bandanas are often an option for covering / disguising partial hairloss and as a head covering for total hairloss. This one doesn't work for me - it drives me nuts - but I know a lot of people that understandably love them too! They are low-cost, flexible, comfy, versatile and snuggly when it is cold. Many people opt to match them to outfits and there are soooo many ways you can wear then too! One added bonus; you can buy them pre-styled too, taking the hassle out of tying them yourself and providing a great alternative to hats!



Basics - Losing my hair really pushed things back to basics. I know this sounds strange, but it did this in many senses of this word. For example, I was used to my natural hair and knew how to wash it, style it, care for it; no hair = a whole new regime. Learning wig care, wig maintenance, skin care, nail care, everything that my condition has affected. I felt in many respects like I was back to being thirteen, learning and experimenting; at times it was fun, but at times it was uber frustrating too!

One other thing worth a mention is that like any 'test' that life throws at you, hairloss is very clarifying. It made me realise the friends I could count on, what was important in life, what made me happy and what I really want to achieve in life. It took me back to basics and put things in perspective and many people I know have said this too!

Beauty - I'm not sure I can do this 'B' justice with my explanation / writing. There are so many things it represents and means to so many people, but I'll give it a go...

Beauty is something that we are judged by and that we judge people by. On the one hand, there are the sayings like 'Beauty is more than skin deep' and 'Beauty is in the eye of the beholder', but on the other hand, there are also adverts which tell us our long glossy hair makes us 'worth it' and that the wrinkles on our face make us less so. I, and many others that I know, really struggled to adjust to the aesthetic changes that hairloss brings; not only is it incredibly emotionally challenging, but I was terrified that I would be somehow less beautiful and therefore less valuable without my hair. In true terms you aren't; it's simply a different beautiful look, and your personality feeds in a lot too, but that doesn't change the fact you feel less beautiful along the way. As an aside, I do now feel beautiful and perhaps more so than when I had hair even - I have a boyfriend who I love and who loves me, masses of confidence and a unique look, but it took me a while to get back to 'beauty'.

Being - Hairloss can be traumatic (sorry that is probably understatement of the year) and I and many others really struggled emotionally. Sometimes it is important along the way to let yourself just 'be' - to live in the moment, accept what you are feeling and let it wash over you. Anger, grief, envy, anything. Just be!

Besties - Hairloss is hard, period! Your besties will be really important to you (as always) and there'll be a lifeline. For me, mine kept me from retreating into my shell and while I must have seemed like a total stuck record, they were there for me! Enough said!

Bitching - Bitching is something that I really worried about when losing my hair - would people judge me, and be horrible about it? As a victim of bullying growing up (not anything too extreme don't worry), I worried that I would be worth less and that I would be subject to bitching behind my back, but as far as I know, everyone has been really positive and friendly about it. No bitching in sight!

Blackheads - this is an obscure side effect to hairloss and certainly one that I have experienced. Hair grows from follicles and as it grows, it naturally pushes dead skin cells to the surface and removes dirt. Since losing my hair, commonly my hair follicles become clogged and my skin gains the appearance of hundreds of tiny blackheads, particularly across my shoulders and the top of my arms. Regular exfoliation keeps on top of them which is fine, but blackheads are definitely a new problem!

Bold - I do mean 'bold' rather than 'bald'. Going without a wig is 'bold' and some would say 'brave' too, but it is! You will get stares, and people will ask questions or offer an opinion, but if you want to do it, go for it! I switch between wig and no wig and it's entirely personal choice. If you want to, do it; if you don't, then don't. Simples!

Boyfriends - this is something that a lot of people worry about; will you get a boyfriend (if you are single), will it change the way they feel about you (if you have one), will you be needy? So, so many questions and obviously the answers will vary on a case-by-case basis, but in my experience, the right one won't care. I met my boyfriend about a month after my alopecia started and actually stopped dating him out of fear, but now we've been together almost four years, we own a house together and my hairloss didn't change a thing! He's been great about it, sees me bald ALL the time and is gorgeous! If it does change the way they think about you, then chances are they are a toss pot and aren't worth it anyway, so move on and find someone who loves you for you.

Brave - this is something that you will be called quite frequently if you are losing your hair. Whether you tell someone about it, show them, or venture out bald, people will call you brave. Some people understandably find this very reassuring and I understand why, but for me I found this TOTALLY irritating - I did not feel not brave and this statement made me feel like a fraud. Brave is rescuing someone, or standing up to someone, not feeling rubbish about yourself because your hair is falling out, particularly when you would do almost anything to change it. Looking back now, I understand why people say 'brave', because it is really difficult to know what to say and it doesn't worry me so much any more, but it did before and I felt very guilty about it! 

Breaking Point - I don't use this term lightly, but at times during my hairloss I hit what felt like rock bottom. It is certainly the lowest I have been (but perhaps not the lowest I can go) and at times felt like breaking point. No matter how awful I felt, I always got through it thanks to the love and support of my friends and family! I cannot thank them enough and remember the old cliché 'what doesn't kill us, makes us stronger'. Embrace it and see just how far you can go...

Please let me know if there is anything I have missed via FacebookTwitter or email...

Victoria x

www.prettybald.co.uk Twitter: @PrettyBald

Sunday, 7 June 2015

#100HairFreeDays - The Conclusion...

I can't believe I actually did it (with a little help from you lovely lot!) We've successfully identified 100 reasons why hairloss is not so bad, which is a little bonkers if you think about it! Here are the final nine - enjoy!
  • no need to wear a mandatory swim cap in the pool #NoHairDontCare
  • from @CurlyWurlyGirly I just dropped a wedge on having my legs waxed, eyebrows waxed and tinted and lashes tinted
  • from @CurlyWurlyGirly much more versatility in makeup
  • from @CurlyWurlyGirly no neck cramp from vanity involving a massive hairpiece that meant I had to lean funny while driving
  • finding your parting after washing your hair is extremely annoying! Not so in wigs!
  • never having crap highlights after they weren't applied close enough to your roots - Arrgh!
  • no more getting your hair caught in the horrible hair toggles that have metal bits on - Ouch!
  • no more asking your Mum for a French plait and receiving a small face lift form it being so tight!
  • it's part of me, and really what's so great about hair anyway! Without it, I'm unique!
That's it folks! 100 reasons! I promised you that some would be a bit of a stretch and somewhat odd, but we made it! You can find out why this experiment started by reading the very first blog post here...

In the meantime, there were even three more reasons (which haven't been shared on Twitter and are exclusive to the blog...
  • No need to have a can of dry shampoo with you everywhere
  • No taking half an hour to dry your hair
  • Never burning your scalp or fingers with the straighteners as you try to do the back of your head
Hope you enjoyed it!

Victoria x

Want to read them all? Click on the links to the other posts here:
www.prettybald.co.uk Twitter: @PrettyBald

Monday, 1 June 2015

My view on alopecia

www.prettybald.co.uk Twitter: @PrettyBald My twitter: @baldguyproblemz

Hi I'm Ben and this is my first blog!! Victoria has posted my story which you can find here if you haven't already seen it: http://prettybaldonline.blogspot.co.uk/2015/05/real-life-male-alopecia-story-meet-ben.html

Alopecia...

It doesn't sound particularly appealing does it?

That's because its not, there's not many people in the world who would voluntarily get rid of all their hair. And I have to say it's definitely the most difficult thing I have had to overcome in my life. Although I have come to terms with it and am much better with coping with it than I used to, I still wish everyday that my hair would come back.

It's probably not surprising and I'm sure there's many of you who feel the same way. But genuinely, I think about it everyday and wish it wasn't the case. I look at myself in the mirror and think 'eww'. I think 'how could someone find this attractive?'. And then I tell myself, 'shut up, what's the point in worrying about it, it is not that bad'. Hmm, perhaps that's a good or bad way to look at it, you can make a judgement on that.

'It's not that bad'... I think telling yourself this can either be seen as a good coping strategy or a misconception. On the one hand, it helps in being more positive and makes you more comfortable with your alopecia. But on the other, it can downplay what in reality, is a huge deal. I am not saying that it should be all consuming but just, it has the capacity to be. Sure you can say 'at least my condition is not life threatening' (quoting myself there) and although that's true and something you should be thankful for, it does not bring your hair back.

Personally, I think what takes the biggest toll, psychologically, is the fact that alopecia leaves you feeling helpless... It leaves you feeling that resistance is futile and it leaves you feeling that there's no hope for your follicles. The shear nature of something that's out of one's control has always been frightening, this is no different when it comes to alopecia, as it is a problem you cannot escape... It is literally right on top of you.

This 'problem' you cannot shake can often make you feel alone, it might make you feel like you are fighting an entire army on your own. However, we are not alone and this is something I have realised fairly recently and it has definitely contributed to my mental improvement recently. Realising that there are others like you, fighting the same fight, oddly, makes you feel better. It is always just nice to have someone or some people who understand how you feel and its something that people that don't suffer from can struggle with. It is nice to know that there are others, and since I have found a wider community of alopecians, I have felt much more comfortable.

There may be many of us but perhaps not as many as you expect... According to the NHS, there are 1 in 1000 people who suffer from some type Alopecia in the UK... Which means there are roughly 60,000 people in total who have either alopecia areata, totalis or universalis. Which sounds like a huge number but in reality that is 0.001% of the UK's population. Weirdly, this makes me feel better as it makes me feel very special. Furthermore, 1 in 200,000 people have my type of alopecia (universalis)... Which if you do the maths works out to 35,500 people IN THE WORLD that have the same condition as me (you could not fill most big sports stadiums with that amount of people)... Thats such a small amount of out of 7 billion; you would need 2.5X that amount of people to fill Wembley stadium!!

Apologies for the stats and football stadium comparisons but thats how my mind works!! The point is, that if you have alopecia, you should feel special because it makes you even more unique as a person. As I said in 'my story', it is what makes you, you. Having this condition builds up so much character and inner strength, that it will equip you to overcome any adversity that you will confront in the future; in this sense, view it as a strength!!

Lastly, I would like to mention my personal, most used coping strategy to my alopecia. I am always the first person to make a joke about it (rightly so), I do realise that occasionally that they are misplaced and/or not funny but making comments about it makes me feel more comfortable; I guess it really comes down to the fact that I think everyone else is thinking it (which they probably aren't) and that I have to say it to avoid others thinking it without my knowledge- I want to be in control of when people think about it I guess. That is something I've just figured out while writing this, its just a way of normalising alopecia for me. I do worry however, that people think I mention it too much and think I am doing it for attention when in reality it's my way of dealing with it!

All in all, to summarise my opinion on alopecia; I think it is unfair because no one deserves to feel like they are helpless against their own body. However, I do think it is important to think positively and remember that in the long wrong this condition will benefit you in terms of your character... I mean who knows, because of the fact that evolution occurs through natural selection of random genetic mutations, we could be the next step in human evolution; this mutation in our genes may be advantageous in the near future! I digress, I think it is important to leave you with my motto on the subject as you are so much more than your hair (or lack of):

Alopecia doesn't define you, you define alopecia